Privat Socialrådgiver Karin B Nissen

Specialist på børne og voksen området - social, psykiatri, handicap

Klinik for Psykoterapi - hundeassisteret kognitiv adfærdsterapi

§ 54 støtteperson for forældre med anbragte børn

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Seje mor

Posted on May 24, 2020 at 10:50 AM

Boganmeldelse:


I 2019 udkom en lille perle af en bog, som slet slet ikke har fået omtale nok; "Seje mor" af Monica Lylloff er intet mindre end genial ☝️


 

Fra forlagsbeskrivelsen:


"Seje mor – En fortælling om livet med 3 børn med særlige behov" er en personlig beretning om at være mor til handicappede børn og om den sorg og kærlighed, der følger med. Bogen beskriver, hvordan det er at være en familie, hvor diagnoser, hjælpemidler og svære valg er en del af hverdagen".


En usentimental og rørende beretning:


 

Jeg læser meget - især faglitteratur - og nyder at læse, men jeg berøres sjældent af det, jeg læser, sådan som jeg blev berørt af Monicas bog. Jeg genkendte ganske enkelt mig selv og det tror jeg også, mange af jer vil kunne! ❤


 

I bogens første 5 kapitler får man et indblik i den svære overgang fra en lille familie på tre med far, mor og søn på 2 år til en stor familie på fem med far, mor, to fortidligtfødte tvillingepiger med svære medfødte fysiske og psykiske problemstillinger og en søn, der med årene viser sig at have flere udfordringer på autismespektret.


 

Familiens udfordringer formidles i et letlæst sprog. Det er godt, for man har brug for ro til at tage alt det ind, som Monica fortæller - som her på bogens side 14:


 

"Vi havde samtidig en lille Kristoffer derhjemme, der lige var blevet to år. Fra den ene dag til den anden var hans mor væk. Forsvundet. Jeg lå på hospitalet med to fremmede piger, som jeg ikke turde røre ved. Jeg savnede at kramme min lille dreng, men samtidig kunne jeg ikke klare at tale med ham eller se ham. Det gjorde simpelthen for ondt. Så jeg prøvede at glemme ham lidt. For at passe på mig".


 

Herefter følger 3 kapitler om kampen for at få hverdagen til at fungere. En kamp som ikke gøres lettere af social- og sundhedssystemernes manglende empati og fleksibilitet, men som også indimellem byder på møder med et handlekraftigt menneske, der får ting til at ske, som sundhedsplejersken på bogens side 76:


 

"Jeg prøvede selv at tale med kommunen om, hvilke muligheder vi havde. Svaret var, at der var en sagsbehandlingstid på flere måneder, før de kunne hjælpe os. Det ville vores sundhedsplejerske ikke finde sig i, så hun ringede til kommunen og sagde, at Emma havde brug for hjælp NU. Det hjalp, for der gik ikke lang tid, før Emma fik sin første specielle stol. Et kæmpe monstrum kaldet en X:Panda-stol. Det første hjælpemiddel og langt fra det sidste".


 

De sidste 3-4 kapitler handler om, at få det bedste ud af det liv, man nu engang er blevet tildelt. Om at finde overskud og glæde i hverdagen, i familien, i parforholdet.


 

"Giv aldrig op. Du er sejere end du tror" slutter Monica sin beretning.


 

Min boganmeldelse slutter med en opfordring til at læse bogen:


Uanset om du har egne erfaringer som bruger af systemet, pårørende eller som fagperson ansat i systemet, så vil du kunne lære noget af Monicas usentimentale og bevægende skildring af et familieliv med børn med særlige behov. Du kommer helt sikkert til at kunne kigge i bogen i forrummet foran mit kontor i SundhedsCenter Børkop ❤

Categories: Børnehandikap, Voksenhandikap, Sagsbehandling

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